Anger at the Man!

Well which man I do not knwo whom to directg it at. but never-the-less I am angry with one of them.
My grand-son was born with Downs Syndrome and who kne wthat when he turned 18 he would have to go before a judge and a panel of doctors to be evaluated so his parents could get guardianship over him. Exactly what all that means has yet to sink in. They have never beena ble to get a dime for his care and always had him covered under insurance but at age 18 he is considered an adult. How or why?

He is speech impaired and will never drive and I doubt he can ever hold a job. He will never marry and his life prospects are pretty dam slim. so sad as I never thought it would turn out this way nor did they. I thought he would continue to grow in school an at least be able to do a bag boy's job at Publix but since he can not talk that will be denied as an option for him.
goodness he did not ask to be born and at 26 his Mom sure had no reason to thin he would have Downs. But sure enough, the day after he was born while she was visiting him in the ICU section of the hospital, his new pediatrician said, well, I see we have a little Downsie kid here. The little baby boy was only about 24 hours old and no one had yet told him parents he had Downs. What a thing to find out and what a way to find it out. He had jaundice and respiratory problems and that was all they knew. He was going to possibly be tranferred to All children's Hospital in St. Petersberg, Fl if he did not stabilize and that is what happened just a day or two later. We were all nearly insane with the Downs news let alone whether or not this first grand-child that we had so longed for might not make it at all. Well. God had another plan for this kid and he did eventually get better but so much more was required.
special formula, special bottles and nipples and therpies of nearly every variety 3 or 4 times a week. No real rest but worry and hope and pray. I saw his parents growing older daily only they never knew I was watching that closely.
I am his grand-mother and there had never been a Downs Child born in my family. This was my first experience with such a small baby too and I was so afraid of him. I did not want to nurt him ever. I vowed then and I do now to do everything that I can humanly possibly do to make his life more outstanding.
So who is this Man that I am angry with, why I do not know who to point the finger at.! I simply do nto knwo who made it a rule that his parents now have to file paper-work to be made his legal guardians and pay 3 to 4 thousand dollars more than the money they have spent all these years to keep him going. He has had hearing problems and had tubes in his ears. We live in a section of Fl where we do not have the proper specialists to take care of children so his parents had to take him to doctors in sarasota and Fort Myers and he has been hospitalized I believe 2 or 3 times with pneumonia. Very serious the last time and he was in All Children's in ICU for so long. We just took the time and went to be with them to offer moral support or even have them holler at us if they needed too even if it hurt cause they simply needed to vent on someone and even if that was us well then let them have at it. I can give as good as I get!
this is a human being we are talking about here not a piece of cattle or land. Why do his parents have to file papers to claim guardianship over him so he can get health care? so, he can still attend school? What is wrong with this picture? Angry, you bet and with whom I do not know. I just know it has to be a man who made these stupid laws, no woman would ever ever in her life judge a human like that. From what his parents are undestanding they will be solely responsible like they always have only he is and adult and the laws change then. Why? He is so child-like and loving and will tell you how much he loves you and show you too. What is worng with this picture.
I am sorry to say this but I am ashamed to be a white American tonight. When I see all the wet-backs who come into this country and get a free ride and here my own grandkid is going to be treated like a criminal more or less and so or his parents.
They are both so nerovus about all this. My husband and I are nto getting any younger and neither of us financially solvent either let alone healthy enough to ask to be his guardians too. What a quagmire and it is only beginning but I am sure as quick at they pay out the money or most of it the things will fly right through. I never knew that this is the way things were done for handicapped kids in this great land of ours and everyday someone is sending money to Africa or Haiti or wherever and not they they don't need it but how about taking care of our own??
Ok, maybe, that is what I am really angry about!! I am sick and tired of reading how a group of local doctors keep running all over the world to help the less fortunate children of those coutnries when there are children like my grand-son right here and many worse who need help and can't get it because of ignorance of their parents or lack of instruction by our local authorities. What is and where is the man to direct all this??
Why he surely isn't in congress or the White House as they are far to busy for this. They will gladly tell you how badly they feel about a situation but if it is global and it doens' touch their own children then well, it is not a biggie!! wrong you are all you MEN. I am one jus tone old grandma who has had enough. give my grand-kid a better education. he was learning slowly and then they crammed him thru middle school and he seemed lost and then they crammed into high school and sure he was in the speical needs classes but he seemed to stop learning. Now, I will admit that I do not know that much about Downs children but maybe, this was normal for him and a lot of them but I can see he still has the ability to learn and I can see his frustration and I see him pulling his hair out and I knwo that is a form of self multilazation and I want to scream DO SOMETHING>  His Mom kept trying with his former pediatrician and that was a loss so she changed doctor's and the child got put on some mood altering drug which has helped a lot but how long can he be on that and when will that need to be adjusted and who will decide when that is necessary????????

To many more men involved and another child gets lost in the battle. I love this young man who is 17 and pray that someone out there reads this and speaks back to me about what is necessary to be done. there is someone out there with the knowledge of where to go from here and please let me hear from you do not remain invisible like the Man!